糖心原创

Home⇛The PCMC Journal⇛vol. 12 no. 1 (2016)

Integrating pediatric palliative care in the health service delivery

Sonia Gonzalez

Discipline: medicine by specialism

 

Abstract:

Palliative to care care, for embracing children with physical, life-limiting emotional, condition social is an and active spiritual a elements. It focuses on enhancement of quality of life for the child and support for the family, and includes the management of distressing symptoms, provision of respite and care through death and bereavement. The Cancer and Hematology Center of PCMC has integrated palliative care in its health service delivery. This case study describes how the integrated model incorporated the WHO building blocks as a foundation in its health system strengthening, which include: leadership/governance, health service delivery, health work force, health information system, access to medicines, and financing. Gaps and challenges have been identified and recommendations for future developments have been made. Policy development; education and training, provision of good quality care including home-/community- based care, available medicines, and viable financing scheme are considered key components ofacomprehensive palliative care program.



References:

  1. American Academy of Pediatrics (AAP). (2000). Palliative care for children. Pediatrics, 106(2), 351–357. Retrieved October 2013, from
  2. American Academy of Pediatrics (AAP). (2006). The medical home. Pediatrics, 122(2), 450. Retrieved April 2014, from
  3. American College of Actuaries (ACA). (2010). The Affordable Care Act and end-of-life care: Executive summary. Retrieved May 2014.
  4. Accenture. (2012). Making the case for connected health. Retrieved May 2014.
  5. Amarante, J. A., Realiza, M., & Gonzalez, S. B. (2013). Pediatric residents’ and fellows’ perspectives on palliative care education: The case of Philippine Children’s Medical Center (Unpublished resident paper). Philippine Children’s Medical Center, Quezon City.
  6. American Academy of Pediatrics Committee on Bioethics & Committee on Hospital Care. (2000). Palliative care for children. Pediatrics, 106, 351.
  7. Appendix C System Assessment Tool. (n.d.). Retrieved October 2013, from
  8. Association for Children’s Palliative Care. (2009). A guide to the development of children’s palliative care services (3rd ed.). Retrieved June 2014.
  9. Bausewein, C., Daveson, B., Benalia, H., Simon, S. T., & Higginson, I. J. (2008). Outcome measurement in palliative care: The essentials.
  10. Boldy, D. (1989). Economic appraisal in health care with particular reference to hospice and palliative care. Australian Health Review, 12(2), 72–76.
  11. Canadian Hospice Palliative Care Association. (2006). Pediatric hospice palliative care: Guiding principles and norms of practice.
  12. Cancer and Hematology Center Manual. (2012). Mission and vision. Philippine Children’s Medical Center.
  13. World Health Organization. (2005). Caregiver booklet: Symptom management and end-of-life care.
  14. Center to Advance Palliative Care (CAPC). (n.d.). Retrieved October 2013, from
  15. Hongoro, C., & Dinat, N. (2011). A cost analysis of a hospital-based palliative care outreach program. Journal of Pain and Symptom Management, 41(6), 1015–1024.
  16. Institute for Clinical Systems Improvement (ICSI). (n.d.). A business case for providing palliative care services across the continuum of care.
  17. International Association for Hospice and Palliative Care (IAHPC). (n.d.). Manual of palliative care.
  18. International Observatory on End of Life Care. (2010). Philippines country report.
  19. Kythe Foundation. (2012). Retrieved November 2014, from
  20. Landers, S. H. (2013). The case for “connected health” at home. Cleveland Clinic Journal of Medicine, 80(Suppl.), eS27–eS29.
  21. Marcos, F. R., Jr. (2012). Senate Bill No. 3342: The Palliative and End-of-Life Care Act of 2012.
  22. Morrison, R. S., Penrod, J. D., Cassel, J. B., et al. (2008). Cost savings associated with hospital palliative care consultation programs. Archives of Internal Medicine, 168(16), 1783–1790.
  23. Neale, P., Thapa, S., & Boyce, C. (2006). Preparing a case study: A guide for design and conducting a case study for evaluation input.
  24. National Institute for Health and Clinical Excellence (NICE). (2012). Opioids in palliative care: Safe and effective prescribing of strong opioids.
  25. PhilHealth. (2012). Circular Nos. 29, 30, & 48: Case Type Z benefit package.
  26. Roberts, D., & Hurst, K. (2012). Evaluating palliative care ward staffing. Palliative Medicine.
  27. Schmeer, K. (1999). Guidelines for conducting a stakeholder analysis.
  28. Sepulveda, C., Marlin, A., Yoshida, T., & Ullrich, A. (2002). Palliative care: WHO’s global perspective. Journal of Pain and Symptom Management, 24(2).
  29. Smallman, A. (2007). Assessment of needs and models of care. In E. Brown et al. (Eds.), Supporting the child and the family in pediatric palliative care.
  30. Shih, A., Davis, K., Schoenbaum, S. C., et al. (2008). Organizing the U.S. health care delivery system. The Commonwealth Fund.
  31. Stewart, B. W., & Wild, C. P. (2014). World cancer report 2014.
  32. World Health Organization. (2008). Integrated health services: What and why?
  33. Valera, M. D. (2013). The Philippines response to universal health care and access to medicines.
  34. Villarica, L. R. (2010). House Bill No. 5250: The Palliative and Hospice Care Act of 2010.
  35. World Health Organization. (1998). Cancer pain relief and palliative care in children.
  36. World Health Organization & International Agency for Research on Cancer. (2008). World cancer report 2008.
  37. World Health Organization. (2007). Everybody’s business: Strengthening health systems to improve health outcomes.
  38. World Health Organization. (2004). Integrated management of adolescent and adult illness: Palliative care.
  39. World Health Organization. (2010). Monitoring the building blocks of health systems.
  40. World Health Organization. (2004). WHO definition of palliative care.
  41. World Health Organization. (2014). Strengthening of palliative care as a component of integrated treatment.
  42. Canadian Hospice Palliative Care Association (CHPCA). (n.d.). The way forward: Integrated palliative approach to care.
  43. National Consensus Project. (2009). Clinical practice guidelines for quality palliative care (2nd ed.).
  44. Commission on Social Determinants of Health. (2008). Closing the gap in a generation.
  45. Council of the European Union. (2006). Health in all policies (HiAP).
  46. Davies, E. (2004). Palliative care needs of older people.
  47. European Society for Medical Oncology (ESMO). (2012). ESMO-EAPC survey.
  48. Estrada, J. (2010). Senate Bill No. 586: The Palliative and End-of-Life Care Act of 2010.
  49. Fletcher, D. S., & Panke, J. T. (2012). Opportunities and challenges for palliative care professionals. Journal of Hospice & Palliative Nursing, 14(7), 452–459.
  50. Freeman, H. P. (2012). The origin, evolution, and principles of patient navigation. Cancer Epidemiology, Biomarkers & Prevention, 21, 1614–1617.
  51. Gomez-Batiste, X., Tuca, A., & Corrales, E. (2006). Resource consumption and costs of palliative care services. Journal of Pain and Symptom Management, 31(6), 522–532.
  52. Gonzalez, S. B. (2012). Developing a palliative care system for Philippine Children’s Medical Center (Unpublished master’s thesis). Philippine Women’s University, Manila.
  53. Gorospe, E. C., & Bausa, A. B. (2006). Integrating volunteers in palliative care. Journal of Palliative Care, 22(4), 297–299

Tools


Copyright © 2026  糖心原创 Exclusively distributed by